Our TelePal Initiative
What is TelePal ? TelePal is a partnership between Liam's Foundation for Pediatric Palliative Care and Bayada Nurses that is focused on the innovative application of Telemedicine technologies to meet a broad range of the pediatric palliative care needs of children with lift-threatening or life-limiting diseases and conditions in a home-based and family-centered setting. It will offer an array of treatment and supportive services delivered through an integrated and interactive television network that effectively and efficiently links the patient family with a full range of caregivers.
Who will TelePal serve? TelePal is intended to fill a perceived gap in the continuum of care for our most vulnerable children and their families. When fully operational, TelePal will serve the needs of any child in its service area requiring palliative care services, without regard to their diagnosis and prognosis and whether or not curative medical strategies are available or appropriate.
How to Access the TelePal Network? Patient involvement in the TelePal system can be initiated by any of the range of caregivers linked through the Bayada telemedicine network; and hopefully that will occur as soon as possible following diagnosis and will continue throughout the period of patient treatment and beyond, as family-appropriate.
What participants and programs would TelePal include? TelePal could link a full range of caregiver institutions, organizations and individuals including hospitals, hospices and community-based practices as well as physicians, nurses, social workers, counselors and other therapists. Services might include real-time patient monitoring, compliance tracking, medication assessment, physician consultation, and family/team medical discussion/decision-making; real-time and/or off-line access to educational, training, social and supportive services and materials, and professional responses to patient-family questions and concerns.
Will TelePal reduce or eliminate the need to see the children personally in their homes or elsewhere? TelePal is not intended to be a substitute for personal physician/nurse therapist interactions with patients and their families. Rather it is meant to supplement and leverage such personal visits through an enhanced, extended and user-friendly communications system that makes such visits more efficient and effective – and to reduce the need for personal visits when they are otherwise unnecessary or impractical.
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